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How have you effectively blocked others from using your disability
as a convenient excuse for rejection?

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"Yes, I really want to work (at home)."

Name: Stephanie Torreno
E-mail: stephtor@aol.com
Date: 26 Jan 1998
Time: 18:35:29
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I am a 24-year-old woman with athetoid cerebral palsy. My CP particularly affects my fine motor skills and my speech (it is mostly intelligible when I’m not nervous or rushing!). I am able to walk independently with an unsteady gait.

Upon graduating from high school cum laude, I became a client of the vocational rehabilitation system. I had very realistic expectations, because a counselor informed me of the limits they had in helping me become productive. Since my goal was to focus on my computer skills, I attended a year-long computer training program for adults with disabilities. I had hoped to become employed by one of the company sponsors, however, the program fizzled out and I did not gain permanent employment. With the pleading of a lab assistant, the vocational rehabilitation office bought me a computer for the purpose of working at home.

That was almost four years ago. Through family and friends, I have done small, temporary projects for a few organizations. I am now convinced I am working with an agency that doesn’t want me to achieve employment. I cannot count the number of times they have used my disability as an excuse. Last spring, I learned that my case had been closed illegally. I took action and had it reopened. One of many counselors over the years labeled me as "self employed" because I feel that working at home is right for me at this time. This label, as opposed to telecommuting, is an excuse. I began making phone calls and researching agencies and opportunities on the Internet in order to block this rejection. I have been told by my counselor that I am dealing with the wrong agency, even though others require VR approval and funding.

I contacted an advocacy organization that is designed to represent state VR clients. Now, I have an advocate who is helping tremendously. The excuses have not stopped, though. At our first meeting, the VR manager informed me that I should not attempt to work because I will lose my Social Security benefits. We told her that it wasn’t true. Then, she said that a telecommuting job is very difficult to find (so why bother?).

My advocate felt I needed to have a assistive technology evaluation to increase my typing skills. Again, an excuse was made. Due to my inability to use dictation software, they didn’t want to explore other devices. After my advocate set up an appointment with the technologist (who works for the VR agency and has CP too), the manager attempted to cancel it. Among the reasons given, she stated that I really did not want to work! The evaluation finally happened after a stressful appeal.

As we continue to fight for the support services I need, I am learning to become a better advocate for myself.

Thank you

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