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Under what circumstances have you felt disadvantaged due to your
disability?
What did you do about it?
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Name: Chammi Rajapatirana
Email: Barbara_Trueheart@fc.mcps.k12.md.us (Barbara Trueheart)
Date: 13 Feb 1999
Time: 16:18:31
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(I find Chammi Rajapatirana very gifted in words, thanks in part to the devotion of his parents who resisted the claim that their child was also mentally retarded and read and read to him, exposed him to culture and travel; and constantly worked with him They are from Sri Lanka.
(Cham, 24, is autistic and did not communicate effectively until he learned facilitated communication seven years ago. He communicates via the computer with his facilitator’s help to give physical support to his hands. Often he needs no support.
(Below is an article that he wrote. Cham and I have been working on this piece for about two months. I only see him once a week. He is studying how to construct a piece of narration and learning the writing and editing process. This was his work to show me that he knew how to construct a narrative with an introduction, closing and using examples to prove his thesis statement. We were also studying transitions in narrative writing.
(Cham is working on another piece about speech. It is very important to him that he speak. He is writing about his experiences trying to control his mouth before random sounds can escape.)
Barbara Trueheart
Here are his words:
"Being mute is like having your brain gouged out. Autism/apraxia took away my voice, and a world that equates muteness with stupidity took everything else. Yes, it really is as if my brain were gouged out. It hurts so much I want to scream. Pouring all my pain into my voice, I want to scream till that searing sound fills my body, my soul, and my world shattering us all into a million fiery shrieking pieces.
"As an experiment, just try keeping your mouth shut for a day. Just try keeping your mouth shut while they talk about you, telling your mother to put you away in an institution. You want to scream "no no no" but you are mute. Cursed pity is I am mute for a lifetime.
"A system focused only on my disabilities deprived me of an education. Fortunately, a determined mom salvaged me. She searched the world over until she found a way my voice could be as loud as yours. There are many of you who still deny me my brain, but there are more of us now. More of us mute people who have found our voices through facilitated communication (fc) and our awesome voices insist that you deny our abilities no more.
"Denied my abilities, I can only get a job that will feed neither my body nor my soul. Recognize my abilities, give me a computer, and, for now, a Facilitator and I will be able to write. What could I write about? I could begin with traveler's tales. Yes, traveler's tales. Traveler's tales not about slogging through jungles or sailing across uncharted seas. I am a traveler ebulliently engaged on a unique journey between worlds. Between the quirky world of autism that I inhabit and the wearying world of "normal" that I would like to explore.
"When you judge me by my muteness and deny me the power of my intellect, we all lose. Ignorance and the lack of assistive technology held us autistic people hostage in the past. How many people lived alone and abandoned, how many lives lost. Hear me now. Ignorance and prejudice still hold too many of us in that silent abyss."
Copyright © 1999 Chammi Rajapatirana. All rights reserved.
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