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When have you felt your dad or mom's disappointment due to your disability?
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Name: Dawn Minette
Email: ocsdcc@dmcom.net
Date: 21 Mar 1999
Time: 19:47:34
Remote Name: dm-o-87.digital-marketplace.net
Remote User:
My father, Arthur Gifford, is in the fifth stage of Parkinson's Syndrome. He has lived with this progressively disabling disease for almost 15 years. Our family has watched him go from a man of intellect and vitality to a prisoner of his own body. As we watched him slowly disappear from life as we can experience it, we all gained a greater appreciation and understanding of each other and living life to the fullest on a daily basis.
My nephew, Kent Lupino, wrote a very insightful poem about my father that perhaps sheds light on the life of a Parkinson's patient and gives one a greater understanding of the "voyage" they take.
The Captain
I can see a little boy, in the basement, playing.
Because there lies the stuff of imagination and discovery.
A ship to uncharted waters -- that goes nowhere and everywhere.
Little boy loves the place, yet there's more.
The ship has a captain, as all ships do.
He guides and leads the complement and crew.
He is gentle, but firm.
A caring face and warm voice.
His eyes are deep, blue as the sea, and warm to the gaze.
Many times, boy and captain set sail, to far off and near off places.
Always a great adventure.
Where the boy wanted to go, the captain had already been.
He knew the way, and set a steady course.
They were always home in time for dinner, too.
Good times. Fond memories.
Now I see the little boy, not so little. Thinking.
His face is thoughtful, as past voyages are fondly remembered.
The basement is still special, but he no longer goes there.
Being older, he has chartered other vessels to exlore, think -- know.
To the world, so big and full, he has gone and will go.
He has questions, but something's different now.
The captain cannot lead another voyage.
He is not gone, but yet not here, and now the boy wonders:
"What was it like?
What did you do?
Before we would set sail, just us two.
Now I can understand, I'm ready to hear.
"What were your dreams? Did they all come true?"
So many things go unanswered. It is quiet now. Too quiet.
The boy loved the captain, and knew him, but didn't know.
For now, the boy remembers, and is happy.
He and the captain will not voyage together again -- not on this sea.
But someday they will set sail once again, and the voyage will not end.
Until then, the boy sets how own course, grateful for the wisdom, and knowledge -- and
love. "Thank you, captain, wherever you may be.
Until we meet again -- God bless, and God speed."
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