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Frightening

Name: Jim Hasse
Email: jhasse@jvlnet.com
Date: 01 Jan 2001
Time: 18:44:27

Story

When was the first time you received honest feedback about how others perceived you due to your disability?

How did you react (on the inside as well as the outside)?

Were you as frightened and overwhelmed as I was at the realization of what I had to overcome?

Jim

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Date: 06 Feb 2008
Time: 15:51:13

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Re: Frightening

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Date: 19 Feb 2008
Time: 02:59:10

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Last changed: May 19, 2008

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Re: Difference between deformity and disability

Name: Amanda
Email: Amanda_b529@yahoo.com
Date: 03 Nov 2004
Time: 20:45:02

Story

I have a 4yr old who is a severe eczema sufferer. I am up all hours of the night with her tossing and turning, and crying to the bleeding from her scratching. I have placed socks on her hands, and tried alot of things from the skin derm specialist. Nothing works, this is a constant stuggle that no one can understand without experiancing it themselves. I have lost a job going in and out of the doctor with her from getting impentigo constantly. I bathe her regularly, to keep bad bacteria out, and followed all the strict doctor rules. I am exhausted, nothing works, this hurts me to see her suffer so badly. Yes I believe this in severe cases is a "True Disability"!!!! Amanda